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About Allison.

Allison Muedder lives in Charlotte, NC with her husband Jon and their three beautiful children. Her son Finn was diagnosed with Hunter Syndrome in 2016, and she now serves on the board of Project Alive, a non profit focused on funding the cure for Hunter Syndrome. She strives to live authentically and love others well with intentionality, grace and hope.

Allison Muedder
Surviving the New Normal
Apr 12

Apr 12 Surviving the New Normal

Allison Muedder
Family, Faith, Rare Disease
Holy Week Reflections
Mar 28

Mar 28 Holy Week Reflections

Allison Muedder
Finn, Rare Disease, Faith, Family
Our Diagnosis Journey
Mar 3

Mar 3 Our Diagnosis Journey

Allison Muedder
Family, Faith, Rare Disease, Finn
How Much Longer Do We Have? Living by Faith While Our Son Is Dying
Nov 15

Nov 15 How Much Longer Do We Have? Living by Faith While Our Son Is Dying

Allison Muedder
Faith, Family, Rare Disease, Finn

Photo by Allison Fowler

Looking at Life Through the Lens of Eternity
Nov 1

Nov 1 Looking at Life Through the Lens of Eternity

Allison Muedder
Faith, Family, Finn, Rare Disease

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